Research Participants

Quantifying Hispanic and Latinx Populations’ Interest in Genetic Research Participation

Published: Wednesday, October 16, 2019, 9:30 a.m. U.S. Central Time Media Contact: Ann Klinck, 301.634.7342, press@ashg.org Findings Reported at ASHG 2019 Annual Meeting HOUSTON, Texas – Researchers are increasingly prioritizing the need for diversity in genetics and genomics research. To help make such studies more inclusive, José G. Pérez-Ramos, MPH and Timothy D.V. Dye, PhD,... Read More

Looking Ahead to ASHG 2019

Looking Ahead to ASHG 2019

From the President’s Desk: Leslie Biesecker, MD September 2019 It’s hard to believe there is just about a month left until the ASHG 2019 Annual Meeting! As always, I’m excited to connect with new and old colleagues from around the world, and to take in the latest scientific advances and perspectives. This year’s schedule promises plenty of... Read More

Defining the Responsibility to Recontact Research Participants with New Genetic Findings

Defining the Responsibility to Recontact Research Participants with New Genetic Findings

Published: Thursday, April 4, 2019, 11:00 a.m. U.S. Eastern Time Media Contact: Nalini Padmanabhan, 301.634.7346, press@ashg.org ASHG, Eight Partner Groups Define Key Issues and Principles ROCKVILLE, Md. – The American Society of Human Genetics (ASHG), along with several co-signing organizations, issued a position statement today outlining whether, and to what extent, there is a responsibility... Read More

Defining the Responsibility to Recontact

Defining the Responsibility to Recontact

In 2019, ASHG issued a statement outlining whether, and to what extent, there is a responsibility to recontact genetic and genomic research participants when new findings emerge that suggest their genetic information should be interpreted differently. Related: Webinar: Exploring the Responsibility to Recontact (June 2019) Position Statement: Responsibility to Recontact Research Participants after Reinterpretation of... Read More

Diversity and Variation among Humans

Diversity and Variation among Humans

Over 99% of all DNA sequences are identical among all people. The small percentage that is different helps make each person unique. Those small differences explain why some people have blue eyes and others have brown eyes. They explain why some people are colorblind while others can differentiate between turquoise and cerulean. Variation and diversity... Read More

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