Realizing the benefits of human genetics and genomics research for people everywhere.
Genetic information about an individual reveals genetic risk information about both the individual and other family members. ASHG issued a statement in 2000 considering the importance of family medical history in genetics research and its balance with ensuring the genetic privacy of research participants’ relatives, and one in 1998 commenting on this balance in the... Read More
In 1999, the National Bioethics Advisory Commission requested feedback on current regulations, practices, and ethical issues related to the use of human biological materials in research. ASHG commented on many of the recommendations in the NBAC’s draft document and provided additional expertise. Related: ASHG Response to NBAC on the Ethical Issues and Policy Concerns Surrounding... Read More