Research Participants

Advising on Use of Biological Materials

Advising on Use of Biological Materials

In 1999, the National Bioethics Advisory Commission requested feedback on current regulations, practices, and ethical issues related to the use of human biological materials in research. ASHG commented on many of the recommendations in the NBAC’s draft document and provided additional expertise. Related: ASHG Response to NBAC on the Ethical Issues and Policy Concerns Surrounding... Read More

Defining Informed Consent for Genetics Research

Defining Informed Consent for Genetics Research

In a 1996 statement on informed consent, ASHG reviewed general considerations and specific research situations, including research using prospectively collected samples, consent disclosures, disposition of samples and results, and retrospective studies of existing samples. Related: ASHG Statement on Informed Consent for Genetic Research (August 1996) Read More

ASHG uses cookies to provide you with a secure and custom web experience. Privacy Policy