Public Policy Letters and Statements

Human genetics and genomics research is providing remarkable insights into the structure and function of the human genome and how this knowledge can be translated into healthcare advances. This scientific progress relies on continued public investment in biomedical research. ASHG writes letters and statements in support of the Society’s policy priorities as well as joins in coalition with the broader biomedical research advocacy community to support robust, predictable, and sustainable federal research funding to fuel scientific advances.

2024 – Public Letters and Statements
Date Title Keywords
January 7, 2024 NDD Community Sign-On Letter: Non-Defense Appropriations Letter; Appropriations
March 11, 2024 Ad Hoc Group for Medical Research community letter: Fiscal Year 2025 Recommendation Letter; Appropriations
March 12, 2024 Group Letter Opposing S. 2140, the Patent Eligibility Restoration Act Letter; Senate Subcommittee on Intellectual Property
May 2, 2024 Written Testimony to House Appropriations LHHS Subcommittee for FY 2025 Letter; Appropriations; NIH
June 25, 2024 FY 2025 Coalition for Health Funding/NDD United Community Sign-on Letter Letter; Appropriations
July 9, 2024 Endocrine Society Community Letter re: Fiscal Year (FY) 2025 House LHHS Appropriations Bill/NIH Restructuring Letter; Appropriations; NIH
August 2, 2024 Comments: ASHG Responds to the 21st Century Cures Act and Cures 2.0 Request for Information Comments; Reps. DeGette & Bucshon
August 13, 2024 Comments: ASHG Responds to the Proposed NIH Reform Framework for Discussion Comments; Chair McMorris Rodgers, House Energy & Commerce
2023 – Public Letters and Statements
Date Title Keywords
January 25, 2023 Comments: ASHG Conveys to White House the Bioeconomy Benefits, Needs of Genetics Research Comments; White House
March 14, 2023 Ad Hoc Group for Medical Research community letter: Fiscal Year 2024 Recommendation Letter; Appropriations
March 23, 2023 Written Testimony to Congress for FY 2024 Letter; Appropriations
May 18, 2023 Written Testimony to Senate Appropriations LHHS Subcommittee Letter; Appropriations; LHHS
October 13, 2023 Community support letter – Dr. Monica Bertagnolli’s confirmation for NIH Director Letter; NIH
December 04, 2023 Comments Re: FDA Regulatory Oversight of Laboratory Developed Tests Comments; FDA
2022 – Public Letters and Statements
Date Title Keywords
March 01, 2022 Comments Re: ASHG’s Response to an NIH RFI on the Genomic Data Sharing Policy Comments; NIH
May 10, 2022 Ad Hoc Group for Medical Research community letter: Fiscal Year 2023 Recommendation Letter; Appropriations
May 11, 2022 Written Testimony to Congress for FY 2023 Letter; Appropriations
May 16, 2022 Research!America community letter: FY 2023 302(b) funding allocation Letter; Appropriations
May 27, 2022 ASHG Letter to Senate HELP Committee & House E&C Committee: USICA Conference Letter  Letter; Senate HELP; House Energy and Commerce
September 19, 2022 Research!America community letter: FY 2023 Appropriations Letter; Appropriations
November 8, 2022 Ad Hoc Group for Medical Research community letter: Urging Swift Passage of FY23 Spending Package Letter; Appropriations
2021 – Public Letters and Statements
Date Title Keywords
May 19, 2021 Written Testimony to Congress for FY 2022 Letter; Appropriations
August 6, 2021 Ad Hoc Group for Medical Research community letter: Fiscal Year 2022 Recommendation Letter; Appropriations
2020 – Public Letters and Statements
Date Title Keywords
March 2020 Written Testimony to Congress for FY 2021 Letter; Appropriations
August 6, 2020 Ad Hoc Group for Medical Research community letter: Covid-19 Related Research Relief Letter
December 4, 2020 Ad Hoc Group for Medical Research community letter: to President-elect Biden Letter
2019 – Public Letters and Statements
Date Title Keywords
April 2019 Written Testimony to Congress for FY 2020 Letter; Appropriations

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