Professional Guidance

Defining the Responsibility to Recontact Research Participants with New Genetic Findings

Defining the Responsibility to Recontact Research Participants with New Genetic Findings

Published: Thursday, April 4, 2019, 11:00 a.m. U.S. Eastern Time Media Contact: Nalini Padmanabhan, 301.634.7346, press@ashg.org ASHG, Eight Partner Groups Define Key Issues and Principles ROCKVILLE, Md. – The American Society of Human Genetics (ASHG), along with several co-signing organizations, issued a position statement today outlining whether, and to what extent, there is a responsibility... Read More

Defining the Responsibility to Recontact

Defining the Responsibility to Recontact

In 2019, ASHG issued a statement outlining whether, and to what extent, there is a responsibility to recontact genetic and genomic research participants when new findings emerge that suggest their genetic information should be interpreted differently. Related: Webinar: Exploring the Responsibility to Recontact (June 2019) Position Statement: Responsibility to Recontact Research Participants after Reinterpretation of... Read More

Encouraging Responsible Genome Editing Research

Encouraging Responsible Genome Editing Research

In 2017, ASHG and 10 international organizations published a position statement on human germline genome editing in The American Journal of Human Genetics. The statement recommended against genome editing culminating in human pregnancy, supported publicly funded in vitro research into its potential clinical applications, and outlined scientific and societal steps necessary before implementation of such... Read More

Considering Pediatric Genetic Testing

Considering Pediatric Genetic Testing

In 2015, ASHG issued a position statement on ethical, legal, and psychosocial implications of genetic testing in children and adolescents. Published in The American Journal of Human Genetics, the statement aims to guide approaches to genetic testing for children in the research and clinical contexts. Related: Infographics: Pediatric Genetic Testing (March 2016) Points to Consider:... Read More

Addressing Innovation in Prenatal Screening

Addressing Innovation in Prenatal Screening

Following rapid innovation in non-invasive prenatal testing (NIPT), ASHG and the European Society of Human Genetics published a joint statement in the European Journal of Human Genetics that addressed the responsible use of these tests across conditions and how they might fit with existing approaches. Related: Statement: Non-invasive Prenatal Testing for Aneuploidy and Beyond: Challenges... Read More

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