Realizing the benefits of human genetics and genomics research for people everywhere.
A leading U.S. research enterprise requires full engagement of the entire STEM talent pool. ASHG supports the STEM Opportunities Act of 2019 to foster inclusivity and diversity in the research workforce. Related: Letter to House Leaders Supporting H.R. 2528 (July 2019) American Physiological Society community letter: to Rep. Eddie Bernice Johnson (Sept. 2020) Read More
The responsible use of large-scale data to advance genetics and genomics research incorporates protections preserving the confidentiality of personal genetic information. ASHG asserts core privacy principles should be applied to all research, regardless of the funding source. Related: AJHG Perspective: Advancing Research and Privacy: Achievements, Challenges, and Core Principles (September 2019) Press Release: ASHG Asserts... Read More
Published: Thursday, April 4, 2019, 11:00 a.m. U.S. Eastern Time Media Contact: Nalini Padmanabhan, 301.634.7346, press@ashg.org ASHG, Eight Partner Groups Define Key Issues and Principles ROCKVILLE, Md. – The American Society of Human Genetics (ASHG), along with several co-signing organizations, issued a position statement today outlining whether, and to what extent, there is a responsibility... Read More
In 2019, ASHG issued a statement outlining whether, and to what extent, there is a responsibility to recontact genetic and genomic research participants when new findings emerge that suggest their genetic information should be interpreted differently. Related: Webinar: Exploring the Responsibility to Recontact (June 2019) Position Statement: Responsibility to Recontact Research Participants after Reinterpretation of... Read More
Published: Thursday, January 3, 2019, 11:00 a.m. U.S. Eastern Time Media Contact: Nalini Padmanabhan, 301.634.7346, press@ashg.org Protections Remain Vital to Research Progress and Given Growing Use of Genetics ROCKVILLE, Md. – The American Society of Human Genetics (ASHG) articulated its support for comprehensive protections against genetic discrimination worldwide, citing the need for fairness, access to... Read More