Statement

Advising on Patenting and Licensing in Genetic Testing

Advising on Patenting and Licensing in Genetic Testing

In 2010, ASHG issued a policy statement outlining guiding principles related to patenting and licensing in the genetic testing arena. These principles address protection of intellectual property, quality of testing, and access to testing. Related: Guiding Principles on Protection of Intellectual Property: Patenting and Licensing in the Genetic Testing Arena (April 2010) Read More

Responding to Misguided Beliefs

Responding to Misguided Beliefs

In 2007, geneticist James Watson was quoted regarding alleged intellectual inferiority among Africans. ASHG found the comments to be tragically misguided and without scientific foundation. Related: Statement: ASHG response to Recent Comments on Intellectual Ability (November 2007) Read More

Commenting on Consumer Genetic Testing

Commenting on Consumer Genetic Testing

With the rise of direct-to-consumer (DTC) genetic tests – tests that are ordered directly by consumers and whose results are reported without a health provider’s involvement – ASHG issued a statement in 2007 on such tests that make health-related claims or directly affect health care decision making. The statement includes recommendations to ensure transparency, provider... Read More

Responding to Allegations Against James V. Neel

Responding to Allegations Against James V. Neel

In his recent book Darkness in El Dorado, journalist Patrick Tierney alleged unethical behavior by James V. Neel, a former president and ASHG Allan Award recipient. ASHG finds these allegations to be gross misrepresentations and basically false. Related: Response to Allegations against James V. Neel in Darkness in El Dorado, by Patrick Tierney (January 2002) Read More

Supporting Genetic Nondiscrimination Since the 1990s

Supporting Genetic Nondiscrimination Since the 1990s

ASHG has supported efforts to prevent genetic discrimination since the 1990s, including the Genetic Information Nondiscrimination Act (GINA), enacted in 2008. One such early bill was Senate Bill 318, the Genetic Nondiscrimination and Health Insurance and Employment Act. Related: ASHG Board Endorses the Genetic Nondiscrimination and Health Insurance and Employment Act (December 2001) Read More

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