Statement

Defining the Responsibility to Recontact Research Participants with New Genetic Findings

Defining the Responsibility to Recontact Research Participants with New Genetic Findings

Published: Thursday, April 4, 2019, 11:00 a.m. U.S. Eastern Time Media Contact: Nalini Padmanabhan, 301.634.7346, press@ashg.org ASHG, Eight Partner Groups Define Key Issues and Principles ROCKVILLE, Md. – The American Society of Human Genetics (ASHG), along with several co-signing organizations, issued a position statement today outlining whether, and to what extent, there is a responsibility... Read More

Defining the Responsibility to Recontact

Defining the Responsibility to Recontact

In 2019, ASHG issued a statement outlining whether, and to what extent, there is a responsibility to recontact genetic and genomic research participants when new findings emerge that suggest their genetic information should be interpreted differently. Related: Webinar: Exploring the Responsibility to Recontact (June 2019) Position Statement: Responsibility to Recontact Research Participants after Reinterpretation of... Read More

ASHG Supports Comprehensive Protections Against Genetic Discrimination

ASHG Supports Comprehensive Protections Against Genetic Discrimination

Published: Thursday, January 3, 2019, 11:00 a.m. U.S. Eastern Time Media Contact: Nalini Padmanabhan, 301.634.7346, press@ashg.org Protections Remain Vital to Research Progress and Given Growing Use of Genetics ROCKVILLE, Md. – The American Society of Human Genetics (ASHG) articulated its support for comprehensive protections against genetic discrimination worldwide, citing the need for fairness, access to... Read More

Prohibiting Genetic Discrimination

Prohibiting Genetic Discrimination

Protections against genetic discrimination advance genetics research and the clinical use of genetics, as well as ensure the ethical use of genetic data. Ten years after the passage of the Genetic Information Nondiscrimination Act (GINA), ASHG remains a staunch advocate for GINA’s strong implementation and for other laws that enhance protections for the public. Related:... Read More

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