ELSI

Parents of Children with Cancer Value Sequencing Results, Even if Non-actionable

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Thursday, October 20, 2016 11:15 a.m. U.S. Pacific Time Findings Reported at ASHG 2016 Annual Meeting BETHESDA, MD – Parents of children newly diagnosed with cancer value the results of whole exome sequencing for a variety of reasons beyond clinical actionability, according to... Read More

ASHG 2016 Tipsheet: Policy and Advocacy

ASHG 2016 Tipsheet: Policy and Advocacy

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Monday, October 3, 2016 12:00 pm U.S. Eastern Time (UTC-05:00) WHEN: Tuesday through Saturday, Oct. 18-22, 2016 WHERE: American Society of Human Genetics 2016 Annual Meeting Vancouver Convention Centre 999-1055 Canada Place, Vancouver, B.C. V6C 0C3 WHAT: Invited and platform (oral) sessions and... Read More

Meet the Trainee Leader, Jonathan Kocarnik

TDC member Doug Dluzen interviews Jonathan Kocarnik, ASHG Social Issues Committee Postdoctoral Fellow and Research Associate, Fred Hutchinson Cancer Research Center/University of Washington  August 2016 ASHG: Please tell us a bit about yourself. Dr. Kocarnik: I grew up in the Pacific Northwest and I currently live in Seattle, WA. My education took me to the... Read More

Teens Value Results of Genetic Tests to Inform Future Life Decisions

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Friday, October 9, 2015 2:30 pm U.S. Eastern Time (UTC-05:00) Findings Reported at ASHG 2015 Annual Meeting BETHESDA, MD – The majority of adolescents in grades 7-12 would prefer to know the results of unanticipated findings found in whole exome sequencing genetic testing,... Read More

Considering Pediatric Genetic Testing

Considering Pediatric Genetic Testing

In 2015, ASHG issued a position statement on ethical, legal, and psychosocial implications of genetic testing in children and adolescents. Published in The American Journal of Human Genetics, the statement aims to guide approaches to genetic testing for children in the research and clinical contexts. Related: Infographics: Pediatric Genetic Testing (March 2016) Points to Consider:... Read More

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