ASHG 2016 Tipsheet: Policy and Advocacy

Media Contact:
Nalini Padmanabhan
ASHG Communications Manager

For Immediate Release
Monday, October 3, 2016
12:00 pm U.S. Eastern Time (UTC-05:00)


Tuesday through Saturday, Oct. 18-22, 2016


American Society of Human Genetics 2016 Annual Meeting
Vancouver Convention Centre
999-1055 Canada Place, Vancouver, B.C. V6C 0C3


Invited and platform (oral) sessions and other presentations of the latest in genetics policy and advocacy:

Wednesday, Oct. 19, 11:00 am-1:00 pm, Room 119, West Building
Invited Session: Unusual suspects: A legal line-up beyond GINA
Moderator: Jennifer K. Wagner, Geisinger Health System

Wednesday, Oct. 19, 10:15-10:30 am, Room 109, West Building
Platform Presentation: Noninvasive prenatal screening for common aneuploidies in a Canadian province: A cost effectiveness analysis
F. Rousseau, Quebec University, et al

Thursday, Oct. 20, 11:30-11:45 am, Ballroom B, West Building
Platform Presentation: Improving biobank consent comprehension: A national randomized survey to assess the effect of a simplified form and review/retest intervention
L.M. Beskow, Duke University, et al

Friday, Oct. 21, 11:00 am-1:00 pm, Ballroom A, West Building
Invited Session: Genome editing: What implications and obligations does this emerging technology create?
Moderators: James C. O’Leary, Genetic Alliance; and Han G. Brunner, Maastricht University Medical Center

Friday, Oct. 21, 6:25-6:40 pm, Ballroom ABC, West Building
2016 Advocacy Award: Senator James Cowan and Bev Heim-Myers
For several years, Senator Cowan and Bev Heim-Myers, Chair of the Canadian Coalition for Genetic Fairness (CCGF) and CEO of the Huntington Society of Canada and the member organizations of CCGF, have led efforts to pass a law preventing genetic discrimination in Canada.

Friday, Oct. 21, 6:25-6:40 pm, Ballroom ABC, West Building
Remarks by Senator James Cowan, Parliament of Canada
For several years, Senator Cowan has led efforts in Parliament to pass a new law to prevent genetic discrimination in Canada. In his remarks, Senator Cowan will address why it is important for Canada to join the United States and other countries in establishing strong protections against genetic discrimination.

Ongoing: Posters Open for Viewing, Exhibit Hall B, West Building

Genetic Counseling, ELSI, Education, and Health Services Research, Posters 2990T-3133W

About the American Society of Human Genetics (ASHG)

Founded in 1948, the American Society of Human Genetics is the primary professional membership organization for human genetics specialists worldwide. Its nearly 8,000 members include researchers, academicians, clinicians, laboratory practice professionals, genetic counselors, nurses, and others with an interest in human genetics. The Society serves scientists, health professionals, and the public by providing forums to: (1) share research results through the ASHG Annual Meeting and in The American Journal of Human Genetics; (2) advance genetic research by advocating for research support; (3) educate current and future genetics professionals, health care providers, advocates, policymakers, educators, students, and the public about all aspects of human genetics; and (4) promote genetic services and support responsible social and scientific policies. For more information, visit:

9650 Rockville Pike | Bethesda, MD 20814 | 301.634.7300 | |

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