Public Policy

For the benefits of human genetics and genomics research to be realized by all people, research studies must reflect humanity’s diversity. This will take a concerted effort by the research community and greater engagement with individuals and communities underrepresented in research. Policymakers play a pivotal role in shaping the landscape of genetic research, healthcare, and... Read More

ASHG recently spoke with Julie Gerberding, MD, MPH, President and CEO of the Foundation for the National Institutes of Health (FNIH), on how this organization leverages expertise across a breadth of scientific industries to address complex health challenges and accelerate research, particularly in human genetics and genomics.  The FNIH is an independent, not-for-profit 501(c)(3) charitable... Read More

In May 2023, ASHG hosted a third year of virtual advocacy meetings with policymakers on Capitol Hill. The week-long event brought together trainee advocates from both the 2022 and the 2023 Advocacy Certificate for Human Genetics and Genomics Trainees (ACGT) program. Participation in this spring advocacy activity is a key feature of the ACGT program.... Read More

In May 2023, ASHG hosted its third year of virtual advocacy meetings on Capitol Hill. Both current and several former trainee advocates from the Advocacy Certificate for Human Genetics and Genomics Trainees (ACGT) program participated in this week-long advocacy activity. The ACGT program was launched as part of ASHG’s Government & Public Advocacy Committee (GPAC)... Read More

The recently released White House Office of Science and Technology Policy (OSTP) report, Bold Goals for U.S. Biotechnology and Biomanufacturing, highlights where insights provided by human genetics and genomics are fundamental for the health biotechnology ecosystem and are critical components of the bioeconomy. This report comes after OSTP solicited public input in a Request for... Read More