Public Policy

2021 Budget for NIH Remains Uncertain

Each year, Congress is tasked with setting budgets across the federal government, including for the National Institutes of Health (NIH), before October 1, the beginning of the new fiscal year. However, this month we passed the October 1 deadline without Congress passing legislation to accomplish this for Fiscal Year 2021. This means that the size... Read More

Advancing Diverse Participation in Research

Advancing Diverse Participation in Research

ASHG remains committed to its vision that people everywhere realize the benefits of human genetics and genomics research. It is imperative for participation in genetics and genomics research to reflect humanity’s diversity. In engaging with vulnerable populations, it is essential that researchers guard against harm resulting from their participation. Related: AJHG Perspective: Advancing Diverse Participation... Read More

Protecting Canadians against Genetic Discrimination

Protecting Canadians against Genetic Discrimination

Last month, Canada’s Supreme Court issued a key decision on the Genetic Non-Discrimination Act (GNDA), a law passed by the Canadian Parliament in 2017 and supported by ASHG.  GNDA protects individuals from being required to undergo genetic testing or share their genetic information, such as with insurance companies and employers. We sat down with Barbara... Read More

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