On May 11, 2022, ASHG hosted its second (virtual) Capitol Hill Day. This event brought together 21 Society members from the ASHG Board of Directors, the Government and Public Advocacy Committee (GPAC), and trainee advocates from the Advocacy Certificate for Human Genetics and Genomics Trainees (ACGT) program. ASHG advocates shared the value and progress of... Read More
On April 4, 2022, the National Academies of Sciences, Engineering, and Medicine (NASEM)’s Committee on Use of Race, Ethnicity, and Ancestry as Population Descriptors in Genomics Research (“the Committee”) held a virtual public workshop as part of its work to prepare a report on this topic, which will be published in early 2023. ASHG President... Read More
10 years ago, I was in my college dorm room writing my senior thesis and wondering what career could possibly combine my interest in genetics, health, communication, and translation of research. Today, I am sitting in my apartment in Washington, DC as an ASHG/NHGRI Genetics and Public Policy Fellow, working remotely at the intersection of... Read More
On March 11, Congress passed a massive end-of-year spending package that included $1.5 trillion in fiscal year (FY) 2022 omnibus appropriations. The package had broad bipartisan support, passing the House on a vote of 361-69 and the Senate on a vote of 68-31. President Biden later signed it into law before government funding was set... Read More
ASHG recently submitted a response to the NOT-OD-22-029 Request for Information (RFI) from the National Institutes of Health (NIH) pertaining to its Genomic Data Sharing Policy (GDS policy). The GDS policy regulates the expectations and procedures for researchers who generate genomic data as part of their NIH-funded research, as well as for researchers who wish to gain access... Read More