ASHG recently submitted a response to the NOT-OD-22-029 Request for Information (RFI) from the National Institutes of Health (NIH) pertaining to its Genomic Data Sharing Policy (GDS policy). The GDS policy regulates the expectations and procedures for researchers who generate genomic data as part of their NIH-funded research, as well as for researchers who wish to gain access... Read More
While summer in Washington D.C. is usually a quiet time – both the U.S. Senate and the House of Representatives traditionally break for a recess for most of the month of August – this year is looking to be the exception. Congress is having a busier summer than usual as legislation for politically charged issues... Read More
Genetics research is providing remarkable insights into the human genome and how this knowledge can be translated into healthcare advances. This scientific progress relies on continued public investment in biomedical research. ASHG supports the robust, predictable, sustainable federal funding of research to fuel scientific advances. Related: Written Testimony to Senate Appropriations LHHS Subcommittee (May 2023)... Read More
A new report commissioned by ASHG examines how human genetics and genomics is growing the U.S. economy and becoming increasingly integrated in healthcare and society. The new report, titled “The Economic Impact and Functional Applications of Human Genetics and Genomics,” indicates that the human genetics and genomics sector contributes $265 billion to the U.S. economy... Read More