Advocacy

Sharon Terry, MA, Recipient of the 2021 Advocacy Award

ASHG Honors Sharon Terry, MA with the 2021 ASHG Advocacy Award

Published: Monday, July 12, 2021, 12:00 p.m. U.S. Eastern Time Media Contact: Krystal Foster, 631-946-0740 press@ashg.org ROCKVILLE, MD – The American Society of Human Genetics (ASHG) has named Sharon Terry, MA as the 2021 recipient of the Advocacy Award. Terry is president and CEO of the Genetic Alliance, an organization engaging individuals, families, and communities... Read More

Making the Case for Human Genetics and Genomics Research

The pandemic and challenges of the past year have made clear how much science and research can impact every aspect of society, from public health and health equity to the economy. It is now more important than ever for scientists to engage with the public, including policymakers. The Government and Public Advocacy Committee (GPAC) is... Read More

Opposing Gene Patenting

Opposing Gene Patenting

A draft bill introduced in May 2019 sought to reform Section 101 of the U.S. Patent Act. If passed, the legislation would allow for the patenting of genes by effectively overturning the 2013 Association for Molecular Pathology (AMP) vs. Myriad Supreme Court decision. Related: Joint Letter from ASHG and ACMG Leadership to Bill Sponsors (July... Read More

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