Advocacy

By Bruce D. Gelb, MD It is a huge honor to join the ranks of ASHG presidents as we look forward to the next three quarters of a century of the Society’s existence. The start of a new presidency is always a time of reflection, introspection, and resolution. By assessing what we have achieved, reviewing what we... Read More

In honor of Rare Disease Week, ASHG staff and over 500 rare disease advocates from across the U.S. took part in the EveryLife Foundation for Rare Disease’s 2024 Legislative Conference in Washington, DC, from February 25-28. During this multi-day event participants were educated on policy proposals impacting the rare disease community ahead of a visit... Read More

For the benefits of human genetics and genomics research to be realized by all people, research studies must reflect humanity’s diversity. This will take a concerted effort by the research community and greater engagement with individuals and communities underrepresented in research. Policymakers play a pivotal role in shaping the landscape of genetic research, healthcare, and... Read More

For Immediate Release: Friday, October 27, 2023, 10:00am U.S. Eastern Time Media Contact: Kara Flynn, 202.257.8424, press@ashg.org ROCKVILLE, MD - The American Society of Human Genetics (ASHG) announced today that four outstanding members of Congress will receive ASHG’s Public Service Award in recognition of their extraordinary leadership on the Senate and House Appropriations Committees and their... Read More

By: Christina Del Greco, BS/BA In the spirit of embracing Washington DC, this year’s annual meeting has multiple exciting opportunities for attendees to learn about ASHG’s policy priorities, and attendees will get to see and engage with an exciting selection of the different policy issues related to human genetics and genomics research. Genomic Data Sharing... Read More