Media Contact:
Nalini Padmanabhan
ASHG Communications Manager
301.634.7346
press@ashg.org
For Immediate Release
Tuesday, October 14, 2014
12:00 pm U.S. Pacific Time (UTC-05:00)
WHEN:
Saturday through Wednesday, Oct. 18-22, 2014
WHERE:
American Society of Human Genetics 2014 Annual Meeting
San Diego Convention Center, 111 W. Harbor Drive, San Diego, CA 92101
WHAT:
Invited and platform (oral) sessions and other presentations of the latest ethical, legal, social, policy, and public health issues related to human genetics:
Saturday, Oct. 18, 10:30 am-2:30 pm, Room 30
ASHG/ASBH Joint Satellite Symposium: From clinical to community sequencing: Emerging ethical, legal, and social issues in genomics
Moderator: Eric Juengst, PhD, University of North Carolina – Chapel Hill
This session will include a discussion of the updated ASHG Statement on Pediatric Genetic and Genomic Testing, last published in 1995.
Sunday, Oct. 19, 10:00 am-12:00 pm, Room 20D
Invited Session: Whole genome/exome sequencing: Patient expectations, literacy, and preferences for genomic information
Moderators: Amy L. McGuire, PhD, JD, Baylor College of Medicine; and Gail E. Henderson, PhD, University of North Carolina – Chapel Hill
Monday, Oct. 20, 4:30-6:30 pm, Room 20BC
Platform Session: ELSI issues in genetics
- 4:30-4:45 pm: The expansion of NIH’s genomic data sharing policy
Erin Luetkemeier, PhD, National Institutes of Health, et al - 4:45-5:00 pm: Data sharing and dbGaP: A survey of practices and opinions among human geneticists
David J. Kaufman, PhD, Johns Hopkins University, et al - 5:00-5:15 pm: Experience with obtaining informed consent for genomic sequencing: Developing recommendations for best practices
Barbara A. Bernhardt, MS, University of Pennsylvania, et al - 5:15-5:30 pm: Developing a patient facing genome sequencing report: Results of key informant interviews
Janet L. Williams, MS, Geisinger Health System, et al
Tuesday, Oct. 21, 8:30-10:00 am, Hall B1
ASHG/ESHG Building Bridges Session: Evolving uncertainties in genomic medicine
Tuesday, Oct. 21, 10:30 am-12:30 pm, Room 30
Platform Session: Genetic/Genomic Education and Services Delivery
- 12:00-12:15 pm: Hereditary cancer communication with underserved patients
Galen Joseph, PhD, UC San Francisco, et al
Tuesday, Oct. 21, 4:30-6:30 pm, Hall B1
Platform Session: We Have the Technology: Next-Generation Genomic Methods
- 4:30-4:45 pm: Whole-genome single-cell haplotyping, a generic method for preimplantation genetic diagnosis
Masoud Zamani Esteki, MSc, KU Leuven et al
Wednesday, Oct. 22, 9:00-11:00 am, Room 20D
Invited Session: Genomic medicine case conference: Illustrative clinical examples Moderators: Ian D. Krantz, MD, Children Hospital of Philadelphia; and Gail P. Jarvik, MD, PhD, University of Washington
Wednesday, Oct. 22, 9:00-11:00 am, Room 29
Invited Session: Stakeholder engagement in genomics policy development: What is it? Why do it? How?
Moderators: Julie N. Harris, PhD, MPH, Kaiser Permanente; and Amy A. Lemke, MS, PhD, University of Washington
Ongoing: Posters Open for Viewing, Exhibit Hall E
Ethical, Legal, Social, and Policy Issues in Genetics, Posters 2330-2383
Ongoing: The Genetic Portrait Project, an Interactive Art Initiative, Ballroom 20 Foyer
About the American Society of Human Genetics (ASHG)
Founded in 1948, the American Society of Human Genetics is the primary professional membership organization for human genetics specialists worldwide. Its nearly 8,000 members include researchers, academicians, clinicians, laboratory practice professionals, genetic counselors, nurses, and others with an interest in human genetics. The Society serves scientists, health professionals, and the public by providing forums to: (1) share research results through the ASHG Annual Meeting and in The American Journal of Human Genetics; (2) advance genetic research by advocating for research support; (3) educate current and future genetics professionals, health care providers, advocates, policymakers, educators, students, and the public about all aspects of human genetics; and (4) promote genetic services and support responsible social and scientific policies. For more information, visit: http://www.ashg.org.
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