Scientists are in the unique position to directly convey the benefits of human genetics and genomics research to policymakers. It is critical that we communicate the benefits of human genetics and genomics research to Congress because decisions happen on the Hill that affect research and the use of genetics-based technologies – with or without our... Read More
On April 4, 2022, the National Academies of Sciences, Engineering, and Medicine (NASEM)’s Committee on Use of Race, Ethnicity, and Ancestry as Population Descriptors in Genomics Research (“the Committee”) held a virtual public workshop as part of its work to prepare a report on this topic, which will be published in early 2023. ASHG President... Read More
ASHG recently submitted a response to the NOT-OD-22-029 Request for Information (RFI) from the National Institutes of Health (NIH) pertaining to its Genomic Data Sharing Policy (GDS policy). The GDS policy regulates the expectations and procedures for researchers who generate genomic data as part of their NIH-funded research, as well as for researchers who wish to gain access... Read More
Members of the American Society of Human Genetics (ASHG) strive to further understanding of the human genome for the betterment of science, health and society. As a community of genetics researchers, ASHG is deeply concerned by the passage and implementation of Texas law S.B. 8 and the potential passage of similar bills nationwide, which will... Read More
In 2021, the genetics and genomics community needs to communicate to policymakers how the field of human genetics and genomics is transforming biomedical research and medicine, including its essential role in combatting COVID-19. This is important for ensuring that policies enable a thriving scientific enterprise and provide resources for research advances. Related: AJHG Perspective: How... Read More