ASHG recently submitted a response to the NOT-OD-22-029 Request for Information (RFI) from the National Institutes of Health (NIH) pertaining to its Genomic Data Sharing Policy (GDS policy). The GDS policy regulates the expectations and procedures for researchers who generate genomic data as part of their NIH-funded research, as well as for researchers who wish to gain access... Read More
Members of the American Society of Human Genetics (ASHG) strive to further understanding of the human genome for the betterment of science, health and society. As a community of genetics researchers, ASHG is deeply concerned by the passage and implementation of Texas law S.B. 8 and the potential passage of similar bills nationwide, which will... Read More
In 2021, the genetics and genomics community needs to communicate to policymakers how the field of human genetics and genomics is transforming biomedical research and medicine, including its essential role in combatting COVID-19. This is important for ensuring that policies enable a thriving scientific enterprise and provide resources for research advances. Related: AJHG Perspective: How... Read More
ASHG supports a woman’s right to make her own reproductive decisions, particularly upon learning that her fetus has a genetic or congenital disorder and has been informed by a licensed or certified health care professional—a view originally articulated in 1991 and reaffirmed and updated in 2020. This includes, among other options, the right to choose... Read More
Dear ASHG Members, Thank you for being a valued ASHG member. You are the reason we do what we do, so we personally wanted to reach out to you regarding our current activities related to COVID-19. Like others, ASHG is actively monitoring the situation for its impact on larger issues of public health, as well... Read More