A leading U.S. research enterprise requires full engagement of the entire STEM talent pool. ASHG supports the STEM Opportunities Act of 2019 to foster inclusivity and diversity in the research workforce. Related: Letter to House Leaders Supporting H.R. 2528 (July 2019) American Physiological Society community letter: to Rep. Eddie Bernice Johnson (Sept. 2020) Read More
The responsible use of large-scale data to advance genetics and genomics research incorporates protections preserving the confidentiality of personal genetic information. ASHG asserts core privacy principles should be applied to all research, regardless of the funding source. Related: AJHG Perspective: Advancing Research and Privacy: Achievements, Challenges, and Core Principles (September 2019) Press Release: ASHG Asserts... Read More
Published: Thursday, January 3, 2019, 11:00 a.m. U.S. Eastern Time Media Contact: Nalini Padmanabhan, 301.634.7346, press@ashg.org Protections Remain Vital to Research Progress and Given Growing Use of Genetics ROCKVILLE, Md. – The American Society of Human Genetics (ASHG) articulated its support for comprehensive protections against genetic discrimination worldwide, citing the need for fairness, access to... Read More
Protections against genetic discrimination advance genetics research and the clinical use of genetics, as well as ensure the ethical use of genetic data. Ten years after the passage of the Genetic Information Nondiscrimination Act (GINA), ASHG remains a staunch advocate for GINA’s strong implementation and for other laws that enhance protections for the public. Related:... Read More
For Immediate Release Monday, November 26, 2018 1:30 p.m. U.S. Pacific Time Media Contact: Nalini Padmanabhan 301.634.7346 press@ashg.org Report from China, if Confirmed, Would Be at Odds with Field Consensus that Germline Editing is Not Ready for Human Use ROCKVILLE, Md. – Given this morning’s reports of infants possibly born in China whose genomes were... Read More