ASHG supports policies that promote genetic and genomic data sharing to advance research and health care with strong protections in place for genetic information. The Society is concerned that a provision in the Senate-passed U.S. Innovation and Competition Act (USICA, S.1260), that requires NIH to consider national security risks in the conduct of human genomic... Read More
A draft bill introduced in May 2019 sought to reform Section 101 of the U.S. Patent Act. If passed, the legislation would allow for the patenting of genes by effectively overturning the 2013 Association for Molecular Pathology (AMP) vs. Myriad Supreme Court decision. Related: Joint Letter from ASHG and ACMG Leadership to Bill Sponsors (July... Read More
Genetics research is providing remarkable insights into the human genome and how this knowledge can be translated into healthcare advances. This scientific progress relies on continued public investment in biomedical research. ASHG supports the robust, predictable, sustainable federal funding of research to fuel scientific advances. Related: Written Testimony to Senate Appropriations LHHS Subcommittee (May 2023)... Read More
ASHG supports the nomination of Eric Lander, PhD, to lead the Office of Science and Technology Policy (OSTP). The announcement of the new team at the dawn of President Biden’s presidency, and elevating the Director of OSTP to a Cabinet position, is a positive sign that science, and scientists, will have a core role in... Read More
Continued funding and public support are essential for driving progress in genetics and genomics research. ASHG is committed to supporting members and the greater community in advocating for research to policymakers. Related: AJHG Perspective: Advocating for Genetics and Genomics Research to Policymakers (February 2020) Read More