Recent Statements

The Importance of Universal Ethical Standards in Science

The Importance of Universal Ethical Standards in Science

Long-standing ethical principles for genetics research help respect and protect research participants, and they are especially important for preventing harm to marginalized or vulnerable populations. Recent reports allege that several genetic studies conducted in China may not have secured individuals’ consent for their participation freely and without coercion. These reports reinforce the need for ASHG... Read More

The Importance of Advocacy as a Scientist

The Importance of Advocacy as a Scientist

Scientists are in the unique position to directly convey the benefits of human genetics and genomics research to policymakers. It is critical that we communicate the benefits of human genetics and genomics research to Congress because decisions happen on the Hill that affect research and the use of genetics-based technologies – with or without our... Read More

ASHG’s Response to an NIH RFI on the Genomic Data Sharing Policy

ASHG’s Response to an NIH RFI on the Genomic Data Sharing Policy

ASHG recently submitted a response to the NOT-OD-22-029 Request for Information (RFI) from the National Institutes of Health (NIH) pertaining to its Genomic Data Sharing Policy (GDS policy). The GDS policy regulates the expectations and procedures for researchers who generate genomic data as part of their NIH-funded research, as well as for researchers who wish to gain access... Read More

ASHG uses cookies to provide you with a secure and custom web experience. Privacy Policy