Realizing the benefits of human genetics and genomics research for people everywhere.
Continued funding and public support are essential for driving progress in genetics and genomics research. ASHG is committed to supporting members and the greater community in advocating for research to policymakers. Related: ASHG Comments: Advanced Research Projects Agency for Health (ARPA-H) Listening Session (August 2021) AJHG Perspective: Advocating for Genetics and Genomics Research to Policymakers... Read More
ASHG 2019 panelists explored the potential policy implications of genetic research into educational attainment, in a joint session with ESHG. Read More
The responsible use of large-scale data to advance genetics and genomics research incorporates protections preserving the confidentiality of personal genetic information. ASHG asserts core privacy principles should be applied to all research, regardless of the funding source. Related: AJHG Perspective: Advancing Research and Privacy: Achievements, Challenges, and Core Principles (September 2019) Press Release: ASHG Asserts... Read More
Genetic counselors are a key part of the delivery of genetic testing in healthcare across the United States, and it is essential that their services are accessible to patients. ASHG strongly supports the Access to Genetic Counselor Services Act. Related: ASHG News: H.R. 7083: Improving Access to Genetic Counseling (December 2018) Letter to House Leaders... Read More