Last month, Canada’s Supreme Court issued a key decision on the Genetic Non-Discrimination Act (GNDA), a law passed by the Canadian Parliament in 2017 and supported by ASHG. GNDA protects individuals from being required to undergo genetic testing or share their genetic information, such as with insurance companies and employers. We sat down with Barbara... Read More
Protections against genetic discrimination advance genetics research and the clinical use of genetics, as well as ensure the ethical use of genetic data. Ten years after the passage of the Genetic Information Nondiscrimination Act (GINA), ASHG remains a staunch advocate for GINA’s strong implementation and for other laws that enhance protections for the public. Related:... Read More
Written by Nascent Transcript writer Allison McCague August 2018 May 21 of this year marked the tenth anniversary of the Genetic Information Nondiscrimination Act (GINA), a landmark piece of legislation that Senator Ted Kennedy—one of the sponsors of the bill—called “the first civil rights bill of the new century of the life sciences.” GINA’s passage was the... Read More
Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Thursday, March 9, 2017 12:00 pm U.S. Eastern Time BETHESDA, MD – The American Society of Human Genetics (ASHG) applauds yesterday’s passage of S-201, the Genetic Non-Discrimination Act, in a 222-60 vote by the Parliament of Canada’s House of Commons. Because of minor... Read More
In 2016, the Parliament of Canada debated bill S-201, the Genetic Non-Discrimination Act, which would ensure that all Canadians can benefit from genetics-based clinical advances without fear of genetic discrimination. ASHG has long supported the establishment of strong protections against genetic discrimination worldwide, and as such, advocated in favor of S-201. The bill was signed... Read More