Advocacy

The responsible use of large-scale data to advance genetics and genomics research incorporates protections preserving the confidentiality of personal genetic information. ASHG asserts core privacy principles should be applied to all research, regardless of the funding source. Related: AJHG Perspective: Advancing Research and Privacy: Achievements, Challenges, and Core Principles (September 2019) Press Release: ASHG Asserts... Read More

Genetic counselors are a key part of the delivery of genetic testing in healthcare across the United States, and it is essential that their services are accessible to patients. ASHG strongly supports the Access to Genetic Counselor Services Act. Related: ASHG News: H.R. 7083: Improving Access to Genetic Counseling (December 2018) Letter to House Leaders... Read More

The Association of Molecular Pathology speaks out against gene patenting. Read More

As the U.S. Congress begins its August recess, now is a great time to meet with your local elected officials and share your research story. Here's how! Read More

Published: Monday, July 22, 2019, 12:00 p.m. U.S. Eastern Time Media Contact: Ann Klinck, 301.634.7342, press@ashg.org Advocate and Photographer to Receive Award at ASHG 2019 Annual Meeting The American Society of Human Genetics (ASHG) has named Rick Guidotti as the 2019 recipient of the Advocacy Award. Mr. Guidotti is the founder and director of POSITIVE... Read More