Publications & News

ASHG Asserts Core Genetic Data Privacy Principles for All Research and Funding Arenas

ASHG Asserts Core Genetic Data Privacy Principles for All Research and Funding Arenas

Published: Thursday, September 5, 2019, 11:00 a.m U.S. Central Time Media Contact: Nalini Padmanabhan, 301.634.7346, press@ashg.org Society Affirms Importance of Shared Genetic Data for Medical Advancement ROCKVILLE, MD – The American Society of Human Genetics (ASHG) today affirmed the crucial role of genetic and genomic data sharing to advance medicine and health research, and asserted... Read More

ASHG Supports Comprehensive Protections Against Genetic Discrimination

ASHG Supports Comprehensive Protections Against Genetic Discrimination

Published: Thursday, January 3, 2019, 11:00 a.m. U.S. Eastern Time Media Contact: Nalini Padmanabhan, 301.634.7346, press@ashg.org Protections Remain Vital to Research Progress and Given Growing Use of Genetics ROCKVILLE, Md. – The American Society of Human Genetics (ASHG) articulated its support for comprehensive protections against genetic discrimination worldwide, citing the need for fairness, access to... Read More

GINA’s 10th Anniversary and the Future of Genetic Privacy

Written by Nascent Transcript writer Allison McCague August 2018 May 21 of this year marked the tenth anniversary of the Genetic Information Nondiscrimination Act (GINA), a landmark piece of legislation that Senator Ted Kennedy—one of the sponsors of the bill—called “the first civil rights bill of the new century of the life sciences.” GINA’s passage was the... Read More