Statement Archive

Opposing Gene Patenting

Opposing Gene Patenting

A draft bill introduced in May 2019 sought to reform Section 101 of the U.S. Patent Act. If passed, the legislation would allow for the patenting of genes by effectively overturning the 2013 Association for Molecular Pathology (AMP) vs. Myriad Supreme Court decision. Related: Joint Letter from ASHG and ACMG Leadership to Bill Sponsors (July... Read More

Defining the Responsibility to Recontact

Defining the Responsibility to Recontact

In 2019, ASHG issued a statement outlining whether, and to what extent, there is a responsibility to recontact genetic and genomic research participants when new findings emerge that suggest their genetic information should be interpreted differently. Related: Webinar: Exploring the Responsibility to Recontact (June 2019) Position Statement: Responsibility to Recontact Research Participants after Reinterpretation of... Read More

Preventing Sexual Harassment in Science

Preventing Sexual Harassment in Science

ASHG supports policies that enable a productive and safe working environment for all scientific professionals. The Society is committed to promoting a harassment-free workplace for geneticists, and believes that science can only achieve its goals when we are able to fully engage the minds, talent, and perspectives of all who wish to participate. Related: Letter... Read More

Supporting Federally Funded Research

Supporting Federally Funded Research

Genetics research is providing remarkable insights into the human genome and how this knowledge can be translated into healthcare advances. This scientific progress relies on continued public investment in biomedical research. ASHG supports the robust, predictable, sustainable federal funding of research to fuel scientific advances. Related: Written Testimony to Congress for FY 2021 (March 2020)... Read More

Prohibiting Genetic Discrimination

Prohibiting Genetic Discrimination

Protections against genetic discrimination advance genetics research and the clinical use of genetics, as well as ensure the ethical use of genetic data. Ten years after the passage of the Genetic Information Nondiscrimination Act (GINA), ASHG remains a staunch advocate for GINA’s strong implementation and for other laws that enhance protections for the public. Related:... Read More

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