Statement Archive

Supporting Geneticists in Advocating for Research

Supporting Geneticists in Advocating for Research

Continued funding and public support are essential for driving progress in genetics and genomics research. ASHG is committed to supporting members and the greater community in advocating for research to policymakers. Related: AJHG Perspective: Advocating for Genetics and Genomics Research to Policymakers (February 2020) Read More

Strengthening Diversity in STEM

Strengthening Diversity in STEM

A leading U.S. research enterprise requires full engagement of the entire STEM talent pool. ASHG supports the STEM Opportunities Act of 2019 to foster inclusivity and diversity in the research workforce. Related: Letter to House Leaders Supporting H.R. 2528 (July 2019) Read More

Advancing Research and Privacy Protections

Advancing Research and Privacy Protections

The responsible use of large-scale data to advance genetics and genomics research incorporates protections preserving the confidentiality of personal genetic information. ASHG asserts core privacy principles should be applied to all research, regardless of the funding source. Related: AJHG Perspective: Advancing Research and Privacy: Achievements, Challenges, and Core Principles (September 2019) Press Release: ASHG Asserts... Read More

Supporting Access to Genetic Counseling

Supporting Access to Genetic Counseling

Genetic counselors are a key part of the delivery of genetic testing in healthcare across the United States, and it is essential that their services are accessible to patients. ASHG strongly supports the Access to Genetic Counselor Services Act. Related: ASHG News: H.R. 7083: Improving Access to Genetic Counseling (December 2018) Letter to House Leaders... Read More

Opposing Gene Patenting

Opposing Gene Patenting

A draft bill introduced in May 2019 sought to reform Section 101 of the U.S. Patent Act. If passed, the legislation would allow for the patenting of genes by effectively overturning the 2013 Association for Molecular Pathology (AMP) vs. Myriad Supreme Court decision. Related: Joint Letter from ASHG and ACMG Leadership to Bill Sponsors (July... Read More

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