Advocacy
U.S. Public Views of Genetics: An ASHG Survey
As genetics and genomics knowledge expands rapidly across research and medicine, Americans are excited and optimistic about this area of research and its possible benefits, according to a survey released in January 2020 by ASHG in partnership with Research!America. The survey finds the large majority of Americans agree genetic knowledge will be important to their... Read More
Strengthening Diversity in STEM
A leading U.S. research enterprise requires full engagement of the entire STEM talent pool. ASHG supports the STEM Opportunities Act of 2019 to foster inclusivity and diversity in the research workforce. Related: Letter to House Leaders Supporting H.R. 2528 (July 2019) American Physiological Society community letter: to Rep. Eddie Bernice Johnson (Sept. 2020) Read More
Advancing Research and Privacy Protections
The responsible use of large-scale data to advance genetics and genomics research incorporates protections preserving the confidentiality of personal genetic information. ASHG asserts core privacy principles should be applied to all research, regardless of the funding source. Related: The Genetic Information Nondiscrimination Act (GINA) AJHG Perspective: Advancing Research and Privacy: Achievements, Challenges, and Core Principles... Read More
Supporting Access to Genetic Counseling
Genetic counselors are a key part of the delivery of genetic testing in healthcare across the United States, and it is essential that their services are accessible to patients. ASHG strongly supports the Access to Genetic Counselor Services Act. Related: ASHG News: H.R. 7083: Improving Access to Genetic Counseling (December 2018) Letter to House Leaders... Read More