Advocacy

Supporting Federally Funded Research

Supporting Federally Funded Research

Genetics research is providing remarkable insights into the human genome and how this knowledge can be translated into healthcare advances. This scientific progress relies on continued public investment in biomedical research. ASHG supports the robust, predictable, sustainable federal funding of research to fuel scientific advances. Related: Written Testimony to Congress for FY 2021 (March 2020)... Read More

Prohibiting Genetic Discrimination

Prohibiting Genetic Discrimination

Protections against genetic discrimination advance genetics research and the clinical use of genetics, as well as ensure the ethical use of genetic data. Ten years after the passage of the Genetic Information Nondiscrimination Act (GINA), ASHG remains a staunch advocate for GINA’s strong implementation and for other laws that enhance protections for the public. Related:... Read More

Denouncing the Misuse of Genetics

Denouncing the Misuse of Genetics

ASHG denounces the misuse of genetics to feed racist ideologies, and affirms that the research community should be clear about genetic knowledge related to ancestry and genomic diversity. Any attempt to use genetics to rank populations demonstrates a fundamental misunderstanding of genetics. Related: AJHG Perspective: ASHG Denounces Attempts to Link Genetics and Racial Supremacy (November... Read More

Protecting Genetic Privacy of Immigrant Families

Protecting Genetic Privacy of Immigrant Families

In 2018, a legislative amendment was proposed that would protect the genetic privacy of immigrant families by restricting the use of their genetic material and data to helping reunify family members. The amendment would require that government officials restrict their use of DNA analysis to when it is truly needed and ensure that biological samples... Read More

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