The American Society of Human Genetics (ASHG) today published a new Guidance on community engagement as a strategy to address underrepresentation in genomics research. Appearing in today’s issue of the American Journal of Human Genetics (AJHG), this new resource was developed by the Society’s Community Engagement Guidance Writing Group, comprised of members of the ASHG... Read More
Long-standing ethical principles for genetics research help respect and protect research participants, and they are especially important for preventing harm to marginalized or vulnerable populations. Recent reports allege that several genetic studies conducted in China may not have secured individuals’ consent for their participation freely and without coercion. These reports reinforce the need for ASHG... Read More
The Access to Genetic Counselor Services Act was introduced in the U.S. House of Representatives (H.R. 2144) and the U.S. Senate (S. 1450) to recognize certified genetic counselors as healthcare providers and authorize the Centers for Medicare and Medicaid Services (CMS) to reimburse genetic counselors directly for the genetic counseling services they provide to Medicare... Read More
Scientists are in the unique position to directly convey the benefits of human genetics and genomics research to policymakers. It is critical that we communicate the benefits of human genetics and genomics research to Congress because decisions happen on the Hill that affect research and the use of genetics-based technologies – with or without our... Read More
On April 4, 2022, the National Academies of Sciences, Engineering, and Medicine (NASEM)’s Committee on Use of Race, Ethnicity, and Ancestry as Population Descriptors in Genomics Research (“the Committee”) held a virtual public workshop as part of its work to prepare a report on this topic, which will be published in early 2023. ASHG President... Read More