Policy

ASHG recently submitted a response to the NOT-OD-22-029 Request for Information (RFI) from the National Institutes of Health (NIH) pertaining to its Genomic Data Sharing Policy (GDS policy). The GDS policy regulates the expectations and procedures for researchers who generate genomic data as part of their NIH-funded research, as well as for researchers who wish to gain access... Read More

On January 26, 2022, The National Institute of Standards and Technology (NIST) National Cybersecurity Center of Excellence (NCCoE) hosted a virtual workshop on the Cybersecurity of Genomic Data. The event had 593 attendees and 20 presenters, including ASHG 2021 President Gail Jarvik and NHGRI Program Director Heidi Sofia. The workshop represented a collaboration of experts... Read More

The Society’s proposed language on diversity in research participation has been incorporated in the final version of this year’s Senate NIH funding bill. The proposed text included in the bill is below: The Committee recognizes the benefits of broad and inclusive participation in biomedical research for increasing health equity. Research cohorts of diverse genetic ancestry... Read More

Published: Thursday, April 22, 2021, 4:30 p.m. U.S. Eastern Time Media Contact: Kara Flynn, 202.257.8424, press@ashg.org ROCKVILLE, MD – Earlier today, the American Society of Human Genetics (ASHG) hosted its first ever Hill Day. Due to the continued impacts of the COVID-19 pandemic, Hill Day 2021 was hosted virtually, making advocating for geneticists more accessible than ever.... Read More

Congress is currently considering ways to provide additional relief measures in response to the coronavirus pandemic, which may include expanded support for the research enterprise. To date, the National Institutes of Health (NIH) has received about $3.5 billion in supplemental funding for diagnostics, vaccine development and other countermeasures. The latest NIH initiative announced last week,... Read More