ASHG recently submitted a response to the NOT-OD-22-029 Request for Information (RFI) from the National Institutes of Health (NIH) pertaining to its Genomic Data Sharing Policy (GDS policy). The GDS policy regulates the expectations and procedures for researchers who generate genomic data as part of their NIH-funded research, as well as for researchers who wish to gain access... Read More
The National Institute of Aging (NIA) leads NIH’s research on the biological, clinical, behavioral and social aspects of aging. Dr. Richard Hodes has served as director of the institute since 1993. We spoke with Dr. Hodes recently about NIA’s priorities, the institute’s investments in human genetics and genomics research, and NIA’s commitment to addressing structural... Read More
The Society’s proposed language on diversity in research participation has been incorporated in the final version of this year’s Senate NIH funding bill. The proposed text included in the bill is below: The Committee recognizes the benefits of broad and inclusive participation in biomedical research for increasing health equity. Research cohorts of diverse genetic ancestry... Read More
ASHG remains committed to diversity, equity, and inclusion in genetics and genomics research. It is both a scientific and community imperative. Recognizing the importance of engagement and collaboration to accelerate this essential work, ASHG is excited to feature two National Institutes of Health senior leaders who have taken on the charge of advancing diversity, equity,... Read More
The National Institute of Mental Health (NIMH) is the lead federal agency for research on mental disorders, including human genetics and genomics research. Joshua A. Gordon, MD, PhD, serves as the Institute’s director, overseeing an extensive research portfolio of basic and clinical research that seeks to transform the understanding and treatment of mental illnesses, paving... Read More