Genetic Privacy

ASHG Survey Finds Americans Strongly Support Human Genetics Research & Potential

ASHG Survey Finds Americans Strongly Support Human Genetics Research & Potential

Published: January 29, 2020, 9:00 a.m. U.S. Eastern Time Media Contact: Kara Flynn or Nalini Padmanabhan, 301.634.7346, press@ashg.org Respondents Want Confidence in Data Privacy, Have Some Knowledge Gaps ROCKVILLE, Md. – As genetics and genomics knowledge expands rapidly throughout research, medicine, and society, Americans are excited and optimistic about this area of research and its emerging health... Read More

Advancing Research and Privacy Protections

Advancing Research and Privacy Protections

The responsible use of large-scale data to advance genetics and genomics research incorporates protections preserving the confidentiality of personal genetic information. ASHG asserts core privacy principles should be applied to all research, regardless of the funding source. Related: AJHG Perspective: Advancing Research and Privacy: Achievements, Challenges, and Core Principles (September 2019) Press Release: ASHG Asserts... Read More

Genetic Testing, Privacy, and Healthcare

Genetic Testing, Privacy, and Healthcare

Tests for Genetic Diseases There are many different tests available for genetic diseases. Some people use direct-to-consumer testing to see whether they are at risk for certain genetic diseases. Genetic testing is also available through a genetic specialist or your primary care physician. In the medical setting, your doctor will first determine if you would... Read More

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