Long-standing ethical principles for genetics research help respect and protect research participants, and they are especially important for preventing harm to marginalized or vulnerable populations. Recent reports allege that several genetic studies conducted in China may not have secured individuals’ consent for their participation freely and without coercion. These reports reinforce the need for ASHG... Read More
Published: Friday, May 27, 2022, 3:00 p.m. U.S. Eastern Time Media Contact: Kara Flynn, (202) 257-8424, press@ashg.org The following statement is attributable to Charles Rotimi, PhD, ASHG President “As the American Society of Human Genetics (ASHG) joins others in deepest sorrow and outrage over the unfathomable recent tragedies in Uvalde, Texas and Buffalo, New York,... Read More
Arvind Kothandaraman is a member of the American Society of Human Genetics (ASHG) Public Education and Awareness Committee (PEAC), and Managing Director of Specialty Diagnostics at PerkinElmer, Inc. His primary professional interest is in equipping clinical laboratories with the tools needed to meet their technical and operational goals. Through his work and community relationships, he... Read More
The Access to Genetic Counselor Services Act was introduced in the U.S. House of Representatives (H.R. 2144) and the U.S. Senate (S. 1450) to recognize certified genetic counselors as healthcare providers and authorize the Centers for Medicare and Medicaid Services (CMS) to reimburse genetic counselors directly for the genetic counseling services they provide to Medicare... Read More
Scientists are in the unique position to directly convey the benefits of human genetics and genomics research to policymakers. It is critical that we communicate the benefits of human genetics and genomics research to Congress because decisions happen on the Hill that affect research and the use of genetics-based technologies – with or without our... Read More