Published: Thursday, September 24, 2020, 12:30 p.m. U.S. Eastern Time Media Contact: Evelyn Mantegani, (240) 833-2014, [email protected] Attributable to Anthony Wynshaw-Boris, MD, PhD, ASHG President Note: In light of recent comments about the role of genetics in society, the American Society of Human Genetics is issuing this statement to reiterate genetics facts and knowledge, as... Read More
Published: Friday, June 24, 2022, 3:15 PM U.S. Eastern Time Media Contact: Kara Flynn, [email protected] Today’s U.S. Supreme Court decision overruling Roe v. Wade is unprecedented and deeply alarming. It will swiftly limit access to safe reproductive healthcare in many states and will inevitably deny pregnant people and families the choices they should have, including... Read More
In 2016, the Parliament of Canada debated bill S-201, the Genetic Non-Discrimination Act, which would ensure that all Canadians can benefit from genetics-based clinical advances without fear of genetic discrimination. ASHG has long supported the establishment of strong protections against genetic discrimination worldwide, and as such, advocated in favor of S-201. The bill was signed... Read More
In response to a 2011 request for information, ASHG submitted comments on the Advanced Notice of Proposed Rule Making for “Human Subjects Research Protection: Enhancing Protections for Research Subjects and Reducing Burden, Delay, and Ambiguity for Investigators.” The Society proposed adjustments to the review, approval, and follow-up for studies that will facilitate research and improve... Read More
After GINA’s passage in May 2008, ASHG responded to a Federal Register Request for Information on issues related to the law’s implementation. ASHG provided comment on definitions that would ensure the regulations keep pace with scientific and clinical advances, and clarified that data collected prior to GINA’s passage should still be covered by the law.... Read More