Advocacy

ASHG, alongside our advocacy partners, continues to help Congress see the impact of human genetics and genomics research, and that robust and sustained funding for the NIH is vital for advancing scientific progress and creating hope. We spoke with a patient participant (who wished to remain anonymous) enrolled in NIH’s Undiagnosed Diseases Network (UDN) to discuss their diagnostic journey under this... Read More

Large-scale data sharing is indispensable for advancing human genetics and genomics (HGG) research and medicine. The willingness of study participants and researchers to share data has been the foundation of rapid advancements of the HGG field for decades. If the potential benefits of HGG research are to be fully realized, maintaining a broad data-sharing ethos and... Read More

The American Society of Human Genetics (ASHG) is deeply troubled by the recent layoffs at the National Institutes of Health (NIH), the Advanced Research Projects Agency for Health (ARPA-H), National Science Foundation (NSF) and other agencies. These abrupt and unilateral decisions have far-reaching consequences that extend beyond the immediate loss of jobs. The impact on... Read More

The American Society of Human Genetics released the following statement in response to the recent announcement from the National Institutes of Health (NIH) regarding the implementation of a 15% reimbursement rate cap for Facilities and Administration (F&A) costs, applicable to both new and existing grants as of February 10. Although a temporary restraining order is... Read More

For Immediate Release: August 5, 2024, 11:30 a.m. U.S. Eastern Time Media Contact: Kara Flynn, (202) 257-8424, [email protected] American Society of Human Genetics (ASHG) President Bruce D. Gelb, M.D., released the following statement in response to the U.S. Senate Appropriations Committee’s approval by a 25-3 vote of the fiscal year (FY) 2025 bill for the... Read More