March 2022

Christi Guerrini, JD, MPH is an Assistant Professor in the Center for Medical Ethics and Health Policy at Baylor College of Medicine.

Inside AJHG: A Chat with Christi Guerrini

Posted By: Sara Cullinan, PhD, Deputy Editor, AJHG SC: What prompted you to start working on this project? CG: Everyone on the team is involved in studying the ethical, legal, and social implications (ELSI) of direct-to-consumer genetic testing, and we’ve been paying attention to stories in the media about individuals who have made surprising family... Read More

ASHG’s Response to an NIH RFI on the Genomic Data Sharing Policy

ASHG’s Response to an NIH RFI on the Genomic Data Sharing Policy

ASHG recently submitted a response to the NOT-OD-22-029 Request for Information (RFI) from the National Institutes of Health (NIH) pertaining to its Genomic Data Sharing Policy (GDS policy). The GDS policy regulates the expectations and procedures for researchers who generate genomic data as part of their NIH-funded research, as well as for researchers who wish to gain access... Read More