Genetic testing and analysis is becoming increasingly important in clinical practice due to our increasing understanding of the human genome and the genetic underpinnings of disease, as well as the emergence of new technologies that facilitate genetic testing and analysis. For similar reasons, genetic information is also being applied for purposes outside of the clinical setting. These clinical and non-clinical applications give rise to various questions such as the appropriate use of genetic technology and to whom genetic testing results should be disclosed. In response, the American Society of Human Genetics issues statements regarding the Society’s perspectives on issues emerging from specific clinical and non-clinical uses of genetic technology and information. Statements are developed either by ASHG alone or in partnership with other organizations, and are intended to inform the genetics community, healthcare providers and other interested parties. 


Please contact us at policy@ashg.org to give us your feedback on ASHG’s policy and advocacy work.