ASHG is committed to championing the importance of genetics and advocating for policies that advance the field. We accomplish these goals by promoting the awareness of key issues that are of importance to the genetics community.

For Questions Contact: policy@ashg.org

Lynn Jorde, PhD, Chair, ASHG Policy and Advocacy Advisory Group, discusses the importance of advocacy for human genetics and ASHG members.

Lynn Jorde, PhD, Chair, ASHG Policy and Advocacy Advisory Group, discusses the importance of advocacy for human genetics and ASHG members.

For tips on how to get started as an ASHG advocate, explore our “10 Ways to Get Involved.

For tips on how to get started as an ASHG advocate, explore our “10 Ways to Get Involved.”

Take Action

Get involved by contacting your representatives in Congress on issues currently impacting the genetics community.

Raise the Caps to Raise NIH’s budget

A budget cap for Fiscal Year 2020 could mean a cut of about $4 billion for NIH budget.

Urge Congress to Increase NIH Funding

The Administration is proposing a 12% cut to NIH funding in Fiscal Year 2020.

Raise the Caps to Raise NIH’s budget

A budget cap for Fiscal Year 2020 could mean a cut of about $4 billion for NIH budget. Contact your representatives in Congress to support #RaisetheCaps and increasing funding for science research.

Urge Congress to Increase NIH Funding

The Administration is proposing a 12% cut to NIH funding in Fiscal Year 2020. Urge your representatives in Congress to support a $2.5 billion increase instead, by contacting them via email or social media.

Become an ASHG Advocate

Oppose H.R. 1313 and Prevent Genetic Discrimination

The Preserving Employee Wellness Programs Act is currently under consideration by the U.S. Congress. This bill would fundamentally undermine the privacy provisions of the Genetic Information Nondiscrimination Act (GINA). Send a letter to your elected representatives asking them to oppose this legislation.

PRESS RELEASES & MEDIA

Stay current with Press Releases and News Clips regarding ASHG advocacy.

LETTERS, COMMENTS & STATEMENTS

Read recent Letters and Comments to policymakers and public statements on key science policy and advocacy issues.

 

BLOG POSTS


Explore Blog Posts related to ASHG policy & advocacy.

ADVOCACY TOOLS


Check out these helpful advocacy resources.

 

ASHG advocates for policies consistent with its policy platform that support robust scientific inquiry, the translation of new discoveries into health advances, and the appropriate application of genetics tools within society.

ASHG supports robust biomedical research funding. ASHG supports the robust, predictable, and sustainable federal funding of biomedical research to fuel future scientific advances. The lack of such funding not only harms the progress of research but also makes careers in science less attractive to the next generation of potential biomedical researchers. The level of funding for the NIH is determined each year by Congress, and ASHG partners with FASEB to advocate for funding levels that ensure continued scientific progress.

ADVOCACY TOOLS

Check out these helpful advocacy resources.

Faseb logo

ASHG is a member of the Federation of American Societies for Experimental Biology (FASEB) and partners with other member societies to advocate for robust, predictable, and sustainable funding for biomedical research.

Subscribe now to receive email updates monthly about ASHG policy and advocacy-related activities.

Share Your Advocacy Experience. Have you done advocacy work in the past? We hope to know more about how members have affected and informed policy and policymakers. Let us know if you have experience or connections with lawmakers that you believe could assist ASHG in its advocacy. (Please note: we greatly respect your privacy and will not share any information you provide without permission.)


Please contact us at policy@ashg.org to give us your feedback on ASHG’s policy and advocacy work.

LETTERS, COMMENTS & STATEMENTS

Read recent Letters and Comments to policymakers and public statements regarding key science policy and advocacy issues.

Letters

3/23/18: FASEB statement on FY 2018 Omnibus Appropriations Bill
11/9/17: FASEB Statement on Taxation of Graduate Student Tuition Waivers
11/2/17: Multi-organization Letter to Congressional Leadership Supporting Raising the Federal Spending Caps to Enable an NIH Budget of $36.1B for Fiscal Year 2018
7/14/17 FASEB Lauds Labor-HHS Subcommittee for Increase in NIH Funding (2017)
5/23/17 FASEB Thanks Appropriators for FY 2017 Funding Increases (2017)
3/7/17: ASHG Letter from president Nancy Cox on the Executive Order Protecting The Nation From Foreign Terrorist Entry Into The United States
3/7/17: ASHG Letter to U.S. Committee on Education and the Workforce Opposing the Preserving Employee Wellness Programs Act (H.R.1313)
3/7/17: Multi-organization Letter to U.S. Committee on Education and the Workforce Opposing the Preserving Employee Wellness Programs Act (H.R.1313)
6/24/16: ASHG Letter of Support for the Genetic Research Privacy Protection Act 
6/9/16 FASEB Applauds Proposed Increase in NIH Budget (2016)
3/20/15: Multi-organization Letter of Support to Preserve Nondiscrimination Protections Afforded by GINA and the ADA


Comments Submitted

01/08/18: ASHG comments to FDA on Oversight of DTC Testing for Genetic Health Risks
11/30/17: ASHG Comments Submitted to the National Academies Committee on the Return of Individual-Specific Research Results Generated in Research Laboratories
10/6/16: ASHG Comments Submitted in Response to FDA's Draft Guidance: Use of Standards in FDA Regulatory Oversight of Next Generation Sequencing (NGS)-Based In Vitro Diagnostics (IVDs) Used for Diagnosing Germline Diseases
10/6/16: ASHG Comments Submitted in Response to FDA's Draft Guidance: Use of Public Human Genetic Variant Databases to Support Clinical Validity for Next Generation Sequencing (NGS)-Based In Vitro Diagnostics
12/16: ASHG Comments Submitted in Response to FDA's Discussion Paper: Use of Databases for Establishing the Clinical Relevance of Human Genetic Variants


Statements

FASEB’s FY 2018 Recommendation (2017)
8/3/17: ASHG Position Statement: Human Germline Genome Editing
3/18/16: ASHG Policy Statement on the Collection and Use of Genetic Information for Law Enforcement 
5/18/16: ASHG Policy Statement on the Canadian Genetic Non-Discrimination Act (S-201) 


See Statement Archive and Policy Platform for other ASHG policy positions.

ADVOCACY TOOLS

Check out these helpful advocacy resources.

Faseb logo

ASHG is a member of the Federation of American Societies for Experimental Biology (FASEB) and partners with other member societies to advocate for robust, predictable, and sustainable funding for biomedical research.


Please contact us at policy@ashg.org to give us your feedback on ASHG’s policy and advocacy work.