As genetics and genomics knowledge expands rapidly across research and medicine, Americans are excited and optimistic about this area of research and its possible benefits, according to a survey released in January 2020 by ASHG in partnership with Research!America. The survey finds the large majority of Americans agree genetic knowledge will be important to their... Read More
Over 99% of all DNA sequences are identical among all people. The small percentage that is different helps make each person unique. Those small differences explain why some people have blue eyes and others have brown eyes. They explain why some people are colorblind while others can differentiate between turquoise and cerulean. Variation and diversity... Read More
Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Wednesday, December 7, 2016 2:45 pm U.S. Eastern Time BETHESDA, MD – The American Society of Human Genetics (ASHG) commends Congress for strengthening privacy protections for genetics research participants as part of the 21st Century Cures Act (H.R.34) passed on December 7. These... Read More
In response to a 2011 request for information, ASHG submitted comments on the Advanced Notice of Proposed Rule Making for “Human Subjects Research Protection: Enhancing Protections for Research Subjects and Reducing Burden, Delay, and Ambiguity for Investigators.” The Society proposed adjustments to the review, approval, and follow-up for studies that will facilitate research and improve... Read More
Genetic information about an individual reveals genetic risk information about both the individual and other family members. ASHG issued a statement in 2000 considering the importance of family medical history in genetics research and its balance with ensuring the genetic privacy of research participants’ relatives, and one in 1998 commenting on this balance in the... Read More