The responsible use of large-scale data to advance genetics and genomics research incorporates protections preserving the confidentiality of personal genetic information. ASHG asserts core privacy principles should be applied to all research, regardless of the funding source. Related: AJHG Perspective: Advancing Research and Privacy: Achievements, Challenges, and Core Principles (September 2019) Press Release: ASHG Asserts... Read More
Published: Thursday, September 5, 2019, 11:00 a.m U.S. Central Time Media Contact: Nalini Padmanabhan, 301.634.7346, press@ashg.org Society Affirms Importance of Shared Genetic Data for Medical Advancement ROCKVILLE, MD – The American Society of Human Genetics (ASHG) today affirmed the crucial role of genetic and genomic data sharing to advance medicine and health research, and asserted... Read More
Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Wednesday, December 7, 2016 2:45 pm U.S. Eastern Time BETHESDA, MD – The American Society of Human Genetics (ASHG) commends Congress for strengthening privacy protections for genetics research participants as part of the 21st Century Cures Act (H.R.34) passed on December 7. These... Read More