Genetic Privacy

ASHG Opposes H.R.1313, the Preserving Employee Wellness Programs Act

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Wednesday, March 8, 2017 8:30 am U.S. Eastern Time Bill Would Undermine Genetic Privacy Protections BETHESDA, MD – The American Society of Human Genetics (ASHG) opposes H.R.1313, the Preserving Employee Wellness Programs Act, introduced on March 2 and scheduled for markup by the... Read More

Protecting Genetic Privacy in Law Enforcement

Protecting Genetic Privacy in Law Enforcement

ASHG supports DNA profiling as a law enforcement tool to identify criminals and exonerate the innocent. The Society believes, however, that the use of DNA in those contexts must respect the public’s right to privacy and that DNA collection should be limited to those convicted of or reasonably suspected of having committed a serious crime.... Read More

ASHG Supports Genetic Privacy Provisions in 21st Century Cures Act

ASHG Supports Genetic Privacy Provisions in 21st Century Cures Act

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Wednesday, December 7, 2016 2:45 pm U.S. Eastern Time BETHESDA, MD – The American Society of Human Genetics (ASHG) commends Congress for strengthening privacy protections for genetics research participants as part of the 21st Century Cures Act (H.R.34) passed on December 7. These... Read More

ASHG Opposes Revised EEOC Regulations Weakening Genetic Privacy

ASHG Opposes Revised EEOC Regulations Weakening Genetic Privacy

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Monday, May 16, 2016 1:00 pm U.S. Eastern Time (UTC-05:00) BETHESDA, MD – The American Society of Human Genetics (ASHG) opposes the U.S. Equal Employment Opportunity Commission’s (EEOC) newly revised Regulations under the Americans with Disabilities Act (ADA) and under the Genetic Information... Read More

Supporting Research Participant Privacy

Supporting Research Participant Privacy

S. 2744, the Genetic Research Privacy Protection Act, was introduced in the Senate in 2016. This bill, supported by ASHG, would guard against the inappropriate use of the Freedom of Information Act to gain access to research participants’ genetic information, and would build on existing privacy protections by strengthening Certificates of Confidentiality. Its provisions were... Read More

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