Dear ASHG Members,
It is a pivotal time at the intersection of science and policy. We know that the past few months have been particularly stressful for our members and for the scientific community. We want you to know that ASHG is dedicated to our mission now more than ever, and we are working hard to ensure that human genetics and genomics research continues to advance. We are advocating for you, your research, and its incredible potential, whether it’s by addressing proposed NIH funding cuts, speaking out about the harms of federal agency layoffs, or reaching out to Congress about the impact of recent executive actions. With that said, here are six key things to know about our advocacy efforts in 2025:
- We are continuing to build relationships with members of Congress to advocate for you. The 119th Congress is in session, and new and returning members have taken their seats in Washington. ASHG has already hit the ground running, welcoming many of these key policymakers on their swear-in day on January 3rd and highlighting the expertise of ASHG members. This year, we will continue to build bridges, strengthen relationships, and advocate for the human genetics and genomics community at every opportunity.
- We are making genetic research accessible to policymakers. Last month, we hosted a successful “Human Genetics 101” webinar for congressional health staffers, breaking down the fundamentals of genetics and genomics, highlighting exciting recent breakthroughs, and emphasizing its impact on everyday life. Next month, we are taking these efforts even further and are planning engagements with members of Congress and their staff, showcasing how the innovative research our members do transforms the care and lives of people across the country.
- We are collaborating with Congressional Caucuses. Caucuses on Capitol Hill are an essential way to focus advocacy efforts and connect with members of Congress who share our passions and goals. In 2025, we are strengthening our relationships with several of these, including the Personalized Medicine Caucus and the Rare Disease Caucus, to name just a few. We plan to work closely with leaders and members of these caucuses to ensure that human genetics and genomics research remains a key priority in Congress over the coming years.
- There’s plenty more coming, and we need your support! If there’s one thing we know for sure in 2025, it is that this year promises to be one of action, innovation, and impact. As situations on Capitol Hill and across the world continue to evolve, ASHG will be right here to advocate for policies and funding that empower our community. However, we can’t do it without you: take action here to share the impact of human genetics and genomics research in your district, state, lab, or personal life with Congress!
- We have a new policy platform for 2025 and beyond. ASHG’s Board of Directors has approved an updated policy platform, setting the stage for the coming years. Our top priorities include securing robust funding for rigorous genetics and genomics research, championing ethical and responsible applications of genetics and genomics, and advocating for equal access to opportunities for the scientific workforce and broadening participation across research cohorts so that all people can thrive. These pillars will continue to guide our work as we push for meaningful progress.
- We will continue to partner with national biomedical research organizations. ASHG is a member of several advocacy coalitions to coordinate and amplify common, broad responses to major issues facing biomedical research, such as overall funding and support for science. We are proud members of organizations including Research!America, the Coalition for the Life Sciences, and the Federation of American Societies for Experimental Biology (FASEB).
As we navigate this new year together, know that at ASHG, we are here to support and represent you as we hold true to our mission, vision, and strategic plan.
Sincerely,
Amanda Perl, CEO