Statement Archive

Addressing Tandem MS in Newborn Screening

Addressing Tandem MS in Newborn Screening

ASHG and the American College of Medical Genetics issued a 2000 statement describing tandem mass spectrometry and its potential role in newborn screening programs. The statement describes the state of the science as well as questions to be considered in its implementation, including funding and training. Related: Statement on Tandem Mass Spectrometry in Newborn Screening... Read More

Advising on Oversight of Genetic Testing

Advising on Oversight of Genetic Testing

In April 2000, the U.S. Secretary’s Advisory Committee on Genetic Testing issued a set of recommendations for the oversight of genetic testing. ASHG voiced general agreement with the recommendations, and provided comments from the perspective of geneticists to further clarify and refine them. Related: Comments on SACGT Preliminary Recommendations on Oversight of Genetic Testing (May... Read More

Advising on Patenting of Genetic Material

Advising on Patenting of Genetic Material

In 2000, the U.S. Patent and Trademark Office released revised interim guidelines that raised the bar for patent eligibility of nucleic acid sequences. ASHG supports the PTO’s new standard of “specific, substantial and credible” utility in its revised guidelines, and suggested an extension of this standard to keep pace with current and planned research. Related:... Read More

Considering Family Privacy in Genetic Research and Medicine

Considering Family Privacy in Genetic Research and Medicine

Genetic information about an individual reveals genetic risk information about both the individual and other family members. ASHG issued a statement in 2000 considering the importance of family medical history in genetics research and its balance with ensuring the genetic privacy of research participants’ relatives, and one in 1998 commenting on this balance in the... Read More

Supporting Responsible Stem Cell Research

Supporting Responsible Stem Cell Research

ASHG members have interest in many questions raised in public discussion of the use of stem cells in biomedical research. ASHG supports federally funded stem cell research and the appointment of an advisory body to foster and maintain public confidence in this area of research. Related: ASHG Statement on Stem Cell Research (August 2001) ASHG... Read More

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