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Wylie Burke,
MD, PhD: ASHG Past President (2007)
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 I'd
like to be remembered
for trying to bring
scientific rigor to some
of the questions being
posed by research in
human genetics. 
- Wylie Burke, MD,
PhD
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Professor
and Chair, Department of Medical History and
Ethics, University of Washington, Seattle,
WA |
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Principal Investigator, University of
Washington Center for Genomics and
Healthcare Equality (an NIH-funded Center of
Excellence in Ethical, Legal, and Social
Implications Research) |
Major Research Interests:
Evaluation of
the ethical, legal, and policy implications
of genetics in medicine and public health,
including:
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Policy and
ethics issues associated with human
genetics research
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Use and
privacy of genetic information
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Federal
legislation and protection of
patient rights (i.e., access quality
genetic services, counseling and
care)
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IRB and
HIPAA (patient privacy policies and
standards of care) issues associated
with human genetics research
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Healthcare
insurance coverage of genetic tests and
services
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Direct to
consumer genetic testing issues, pros
and cons related to:
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The
healthcare benefits and risks
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Federal
regulation issues
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Establishing ethical and fair
standards to protect consumers
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Personalized medicine
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Pharmacogenetics
(i.e., targeted
treatment, targeted drug therapy)
Biography:
Dr. Wylie Burke
is Professor and Chair of the
Department of
Medical History and Ethics at the University
of Washington. She is also Principal
Investigator of the
University of Washington
Center for Genomics and Healthcare Equality,
an NIH-funded Center of Excellence in
Ethical, Legal, and Social Implications (ELSI)
Research. Her research addresses the social,
ethical and policy implications of genetic
information.
Dr. Burke received a Ph.D. in Genetics and
an M.D. from the University of Washington
and completed a residency in Internal
Medicine at the University of Washington.
She was a Medical Genetics Fellow at the
University of Washington from 1981 to 1982.
Dr. Burke was a member of the Department of
Medicine at the University of Washington
from 1983 to 2000, where she served as
Associate Director of the Internal Medicine
Residency Program from 1988 to 1994 and as
founding Director of the University of
Washington's Women's Health Care Center from
1994 to 1999. She was appointed Chair of the
Department of Medical History in October
2000. She is also an Adjunct Professor of
Medicine and Epidemiology and a Member of
the Fred Hutchinson Cancer Research Center.
Dr. Burke was the President of the
American Society of Human Genetics (ASHG) in
2007, and is a Fellow of the American
College of Physicians (ACP). She has also
served on the NIH National Advisory Council
for Human Genome Research and the
Secretary's Advisory Committee on Genetic
Testing (SACGT). In 1998, Dr. Burke was
named the Ameia Visiting Scientist at the
Centers for Disease Control and Prevention
(CDC).
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