Thank you for speaking out on issues important to ASHG! Below are our current policy and advocacy efforts and details on how you can get involved.

Oppose H.R. 1313 and Prevent Genetic Discrimination

H.R.1313, the Preserving Employee Wellness Programs Act, is currently under consideration by the U.S. Congress. This bill, introduced on March 2, 2017, would fundamentally undermine the privacy provisions of the Genetic Information Nondiscrimination Act (GINA) and the Americans with Disabilities Act (ADA).  

What You Can Do:

If you are a member of the genetics community:

If you are an organization wishing to add your name to the group letter opposing HR1313:

  • Email policy@ashg.org with your organization’s name, contact name, and contact information. Scroll to the end of the letter to view the list of organizations that have already signed on.

Resources:

Share Your Experience with the Recent Immigration Restrictions and Support Global Science

On March 6, the White House issued a new Executive Order with the intent of suspending entry of nationals from six countries into the United States, and of refugees whose applications have not yet been approved by the Department of State. As a global organization that deeply values collaboration, we believe this order will harm the progress of scientific research in the U.S. and abroad. ASHG opposes the travel ban and is monitoring the effect on our members.

What You Can Do:

  • Share your story of how your personal life, career, or workplace has been affected by these restrictions. We hope to collect stories of how members are being affected and inform policymakers how the Executive Order is having an impact on science. (Please note: we greatly respect your privacy and will not share any information you provide without your permission.)

Resources:

Advocate for Research Funding

ASHG is a member of the Federation of American Societies for Experimental Biology (FASEB) and partners with other member societies to advocate for funding for biomedical research. Add your voice of support for the National Institutes of Health and other research-funding agencies via FASEB's Legislative Action Center.

These general resources are useful in promoting federal funding for science, evidence-based policy, and related causes.


Please contact us at policy@ashg.org to give us your feedback on ASHG’s policy and advocacy work.