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Policy & Position Statement Archives



Policy & Position Statement Archive




ASHG Comments Submitted in Response to FDA's Draft Guidance: Framework for Regulatory Oversight of Laboratory Developed Tests (LDTs) February 2015
ASHG Statement on Tennessee Law Undermining the Teaching of Evolution April 2012
ASHG Comments Submitted in Response to U.S. DHHS Human Subjects Research Regulations Common Rule RFI October 2011
ASHG Comments to NIH in Response to Genetic Testing Registry RFI July 2010
ASHG Ancestry Testing White Paper: “Inferring Genetic Ancestry: Opportunities, Challenges, and Implications” (Am. J. Hum. Genet. 2010;86:661-673) May 2010
Guiding Principles on Protection of Intellectual Property: Patenting and Licensing in the Genetic Testing Arena April 2010
ASHG Response to RFI Regarding Sections 101 through 104 of the Genetic Information Nondiscrimination Act (GINA) December 2008
ASHG Ancestry Testing Statement and Recommendations: “Guidelines for Understanding the Issues and Implications Involved” November 2008
ASHG Endorses Passage of Genetic Information Nondiscrimination Act (GINA) by U.S. Congress April 2008
ASHG Response to Recent Comments on Intellectual Ability November 2007
ASHG Statement on Direct-to-Consumer (DTC) Genetic Testing in the United States (Am. J. Hum. Genet. 2007;81:635-637) September 2007
ASHG Response to NIH on Genome-Wide Association Studies (GWAS) November 2006
ASHG Code of Ethics March 2006
Final NIH Statement on Sharing Research Data with the Public and the HIPAA Privacy Act February 2003
ASHG Commentary: Response to Allegations against James V. Neel in Darkness in El Dorado (Am. J. Hum. Genet. 2002;70:1-10) January 2002
ASHG Endorses the U.S. Genetic Nondiscrimination and Health Insurance and Employment Act December 2001
ASHG Ad Hoc Committee Report on Consumer Issues in Human Genetics Research October 2001
ASHG Statement on Stem Cell Research August 2001
Tandem Mass Spectrometry in Newborn Screening: Joint Statement of the American Society of Human Genetics and the American College of Medical Genetics (Genetics in Medicine. 2000;2,4:272-273) July/August 2000
ASHG Response to NIH Request for Public Comments on Preliminary Final Recommendations on Oversight of Genetic Testing May 2000
ASHG Statement on Gene Therapy (Am. J. Hum. Genet. 2000;67:272-273) April 2000
Genetic Testing in Adoption: Joint Statement of the American Society of Human Genetics and the American College of Medical Genetics  (Am. J. Hum. Genet. 2000;66:761-767) March 2000
ASHG Advisory Statement on Family Medical History and Privacy March 2000
ASHG Response to U.S. Patent and Trademark Office March 2000
ASHG Response to NIH Office of Science Policy on Draft Guidelines for Research Involving Human Pluripotent Stem Cells January 2000



ASHG Response to National Bioethics Advisory Commission on the Ethical Issues and Policy Concerns Surrounding Research Using Human Biological Materials January 1999
ASHG Statement on Eugenics and the Misuse of Genetic Information to Restrict Reproductive Freedom October 1998
ASHG Statement on Professional Disclosure of Familial Genetic Information (Am. J. Hum. Genet. 1998;62:474-483) February 1998
ASHG Statement on Behavioral Genetics: “Developments in Human Behavioral Genetics: Past Accomplishments and Future Directions”   (Am. J. Hum. Genet. 1997;60:1265-1275) June 1997
ASHG Statement on Informed Consent for Genetic Research (Am. J. Hum. Genet. 1996;59:471-474)
August 1996
ASHG Statement on Use of Apolipoprotein E Testing for Alzheimer Disease (JAMA. 1995;274(20):1627-1629) November 1995
Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents (Am. J. Hum. Genet. 1995;  57:1233-1241) November 1995
ASHG Ad Hoc Committee Report on Genetic Testing and Health Insurance Issues (Am. J. Hum. Genet. 1995;56:327-331) January 1995
ASHG Statement on Genetic Testing for Breast and Ovarian Cancer Predisposition (Am. J. Hum. Genet. 1994;55:i-iv) November 1994
ASHG Statement on Cystic Fibrosis Carrier Screening (Am. J. Hum. Genet. 1992;51:1443-1444) December 1992
ASHG Position Paper on Patenting of Expressed Sequence Tags November 1991
ASHG Human Genome Committee Report on the Human Genome Project: Implications for Human Genetics (Am. J. Hum. Genet. 1991; 49:687-691) September 1991
ASHG Social Issues Committee Report on Genetics and Adoption: Points to Consider (Am. J. Hum. Genet. 1991;48:1009-1010) May 1991
ASHG Statement on Clinical Genetics and Freedom of Choice (Am. J. Hum. Genet. 1991;48:1011) May 1991
ASHG Statement on Cystic Fibrosis Screening (Am. J. Hum. Genet. 1990;46:393) February 1990



Update on ASHG Policy Statement on Maternal Serum Alpha-Fetoprotein Screening (Am. J. Hum. Genet. 1989;45:332-334) August 1989
ASHG Statement on DNA Banking and DNA Analysis from the Ad Hoc Committee on DNA Technology (Am. J. Hum. Genet. 1988;42:781-783) May 1988
Proposed ASHG Position Statement on Mapping/Sequencing the Human Genome (Am. J. Hum. Genet. 1988;43:101-102) April 1988
ASHG Policy Statement on Maternal Serum Alpha-Fetoprotein Screening Programs and Quality Control for Laboratories Performing Maternal Serum and Amniotic Fluid Alpha-Fetoprotein Assays (Am. J. Hum. Genet. 1987;40:7-82) February 1987




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