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Policy & Advocacy Overview

 

 

ASHG Policy Fellowships & Grants

ASHG/NHGRI Genetics & Public Policy Fellowship


 

ASHG Position Statements & Comments on Public Policy

ASHG Policy & Position Statement Archives


 

Gene Patent Issues

 

Principles for protecting intellectual property

 

BRIEF FOR AMICI CURIAE: IN SUPPORT OF PLAINTIFFS’ OPPOSITION TO DEFENDANTS’ MOTION TO DISMISS AND IN SUPPORT OF PLAINTIFFS’ MOTION FOR SUMMARY JUDGMENT

American Medical Association, American Society of Human Genetics, American College of Obstetricians and Gynecologists, American College of Embryology, and The Medical Society of the State of New York

 

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ASHG Testimony to SACGHS

Comment on District Court Ruling

 


 

Genetic Information Nondiscrimination Act (GINA) Information & Resources

ASHG Response to Request for Information Regarding Sections 101 through 104 of the Genetic Information Nondiscrimination Act (GINA) of 2008

 

GINA Op-Ed Articles by ASHG’s Executive Vice President, Joann Boughman, PhD

Coalition for Genetic Fairness: “What does GINA Mean? A Guide to the Genetic Information Nondiscrimination Act” - This resource provides a functional outline of GINA’s protections and how the legislation impacts every individual in the nation. It also includes a history of the legislation, hypothetical situations of genetic discrimination, and key examples and definitions. We encourage individuals and organizations to utilize the guide either as a resource for answering questions or as a flexible tool to adapt and customize for use within your community.

Johns Hopkins University Genetics and Public Policy Center: “Fact Sheet on the Genetic Information Nondiscrimination Act (GINA)” - Following GINA’s passage, the Center generated this widely-distributed fact sheet summarizing GINA’s provisions. This resource provides a concise overview of what the current GINA legislation does and does not do. It also provides the terms and definitions of what protections are covered under GINA’s stipulations, as well as an outline of the scope and enforcement of this legislation.


 

ASHG & Genetics Advocacy

ASHG Genetics Advocacy Efforts

 

Genetics Advocacy Overview

"Genetics Advocacy: Opportunity and Obligation" (from AJHG, March 2006)

Genetic Information Nondiscrimination Act (GINA)

 

The ASHG/Genetic Alliance Advocates Training Partnership Program

 

Overview (ASHG)

Overview (Genetic Alliance)

Upcoming Events & Opportunities

 

NIH Genomic Data Sharing Policy (PDF; Aug 2014)

 

FASEB Washington Update

 

Breakthroughs in Bioscience


 

Other Resources

Public Policy Web Sites of Interest

 

The American Society of Human Genetics, Incorporated

9650 Rockville Pike Bethesda, Maryland 20814

society@ashg.org 1-866-HUM-GENE (301) 634-7300

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