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Social Issues Committee
Composition and Tenure
The Social Issues Committee shall consist of
9 members appointed for 3-year terms, up to
3 to be appointed each year. No member of
the committee may serve more than 2
consecutive terms.
Mandate
The committee shall recommend, and upon
Board approval carry out, activities
concerned with the impact of genetic
knowledge and practice on society. The
committee should attempt to detect, define,
and explain situations wherein genetic
knowledge and practice are or seem to be at
odds with societal norms, practices, and
expectations, and offer suggestions whereby
these differences might be interpreted and
accommodated. The committee must be
especially concerned with the evaluation of
genetic innovations, both basic and
practical, and how these benefit or place at
risk the population at large, subgroups, and
individuals. Attention must also be given to
the role of government and commercial
practices and policies as they relate to
human genetics and society.
Articles or statements that reflect a
position of the ASHG must be approved by the
Executive Committee and/or the Board of
Directors. These articles or statements
should not include the minority opinion of
the group.
Charge of Committee
(as of December 2, 2003 by Executive
Committee vote)
To more readily meet the concerns of the
ASHG membership, the 2003 Executive
Committee, keeping the above mandate in
mind, determined that the constitution of
the committee would change (but not the
number) by the addition of two board
members. These board members would ensure
that the charges of the committee would be
carried out. Charges for the committee would
consist of (l) acting as a sounding board
for new social issues to be brought up and
discussed by the membership; (2) preparing
the social issues sessions at the annual
meeting; (3) providing the President and the
EVP with guidance as to the development of
Rapid Action Teams consisting of members
whose expertise can enhance the development
of position papers on particular issues on
short notice.
2008 Committee Members
Standing Committee
Bylaws specification: 9 members appointed
for 3-year terms, up to 3 new each year.
Sharon Terry, MA (2008) Chair
Genetic Alliance
4301 Conn. Ave., NW, Ste 404
Washington, DC 20008-2369
202-966-5557 X213 FAX: 202-966-8553
sterry@geneticalliance.org |
S. Malia Fullerton, DPhil (2009)
Univ. Washington Sch Medicine
Dept. Medical History/Ethics
Box 357120
Seattle, WA 98195
206-616-1864 FAX: 206-685-7515
smfllrtn@u.washington.edu |
Mark E. Nunes, MD (2008)
Children’s Hospital
Div. Mol. & Hum. Genetics
700 Children’s Drive
Columbus, OH 43205
614-722-3545 FAX: 614-722-3546
nunesma@pediatrics.ohio-state.edu |
Timothy A. Caulfield, LLM (2010)
Univ. Alberta
Health Law Institute
88th St. & 11th Ave., Law Center
Edmonton T6G 2H5
AB, Canada
780-492-8358 FAX: 780-492-9575
tcaulfld@law.ualberta.ca |
Kathy Hudson, PhD, (2009)
Johns Hopkins University
Genetics & Public Policy Center
1717 Mass Ave NW, #530
Washington, DC 20036
202-663-5976 FAX: 202-663-5992
khudson5@jhu.edu |
Bradley Popovich, PhD, MSc (2009)
Sirius Genomics, Inc.
603-1125 Howe St.
Vancouver V6Z 2K8 BC, Canada
604-484-7195 FAX: 604-484-7190
bpopovich@siriusgenomics.com |
Mildred K. Cho, PhD (2010)
Stanford Ctr Biomedical Ethics
Dept Pediatrics, Genetics
701 Welch Road, Ste 1105
Palo Alto, CA 94304
650-725-7993 FAX: 650-725-6131
micho@stanford.edu |
Miriam Kuppermann, PhD, MPH
(2008)
Univ. California, San Francisco
Dept. OB/GYN & RS
3333 California St., Ste 335
San Francisco, CA 94143-0856
415-502-4089
kuppermannm@obgyn.ucsf.edu |
Charmaine D. Royal, PhD (2008)
Inst for Genome Sci & Policy, #2127A
Duke University
101 Science Drive, DUMC Box 3382
Durham, NC 27708
919 668-6515 FAX: 919-668-0795
charmaine.royal@duke.edu |
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