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Social/Special Events

 

 

ASHG Opening Mixer and Trainee Mixer Within a Mixer

San Francisco Marriott Marquis Hotel, Yerba Buena Ballroom 7/8/9, Lower Level
Tuesday, November 6
7:00 pm – 8:30 pm

 

 

 


This event is open to all scientific registrants and paid guests. The mixer offers a relaxed atmosphere in which attendees can become acquainted and reacquainted with colleagues. Light snacks, refreshments and a cash bar will be offered.

Trainees should look for the designated area. Trainees will receive one complimentary beverage ticket (tickets will be printed on trainee badges). Please remember to bring this with you to the reception.

 


 


 

An Interactive Play: Drama, Discourse and Genomics: From IRBs to IFs

Separate advance registration required. Please check the appropriate box on the meeting registration form.
Friday, November 9
7:00 pm-9:00 pm (Moscone Center, Room 300, Esplanade Level)

 

 

 


This interactive session weaves audience participation with the premiere of an original new vignette-play that illuminates ethical, psychological, social, legal, and policy concerns surrounding the sharing of information generated by next-generation sequencing. Between each act of the fictionalized play, audience and actors are engaged in discussion, as the vignettes evolve -- from an Institutional Review Board (IRB) meeting through the informed consent process to the disclosure of incidental findings (IFs).

The presenters, Lynn Bush and Karen Rothenberg, delve into controversial ethical issues including:

 

  • How much and what should be reported?
  • To whom?
  • Under what circumstances?
  • How sharing medical information differs in varying cultures.

 

Volunteer actors include:

  • James Evans, Univ. of North Carolina

  • Carla Easter, NHGRI

  • Virginia Sybert, Univ. of Washington

  • Kristy Lee, Univ. of North Carolina

  • Rosario Isasi, McGill University

  • Carlos Bustamante, Stanford University

  • Barbara Biesecker, NHGRI

  • Barbara Koenig, UCSF

  • Kwame Anyaney-Yeboa, Columbia University

  • Kandamurugu (Murugu) Manickam, Nationwide Childrens

  • Malia (Stephanie) Fullerton, University of Washington
     

This dramatization is intended to foster a deeper appreciation for conflicts when potentially disclosing massive amounts of genomic information. The dynamics of this play revolve around a family (including a child symptomatic with an autosomal recessive disorder and an “unaffected” sibling), their geneticist, genetic counselor and a discussion among IRB members, as they all experience the challenges of a genomic research study. Interspersed throughout the play, we explore together the complex implications of genomic information, particularly dilemmas raised by the return of results. Contextual subtleties will be brought to life by the volunteer actors who are ASHG attendees.

Variations in scenarios are shared to highlight the role that context plays when disclosing incidental findings. The goal of this interactive play is to provide a creative approach to enhance understanding of the inherent tensions and implications to both patient-participants and professionals in deciding whether to share genomic information with family members of varying ages, each with different values and vulnerabilities.

Seating is limited, so please register early. The $10 USD fee will offset the cost of evening refreshments. A cash bar will be available. Seats may be reserved only by registering in advance. Tickets will be issued along with your meeting badge. Tickets are non-refundable.
 


 

The American Society of Human Genetics, Incorporated

9650 Rockville Pike • Bethesda, Maryland 20814 USA

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